Clients’ Preferences for Family Involvement and Subsequent Family Contact Patterns Within OnTrackNY Early Psychosis Services

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Amplify OnTrackNY publication summaries summarize peer-reviewed publications focused on quality improvement or research conducted to help us learn & improve the program.

Study snapshot

This study explores participants’ preferences for family involvement in treatment and trends in family contact with teams within OnTrackNY.¹  

This study asks:

1. What characteristics are associated with participants’ preferences for family involvement?
2. What patterns in family contact with teams emerge over time?

Findings are based on information collected by teams at program enrollment and every three months after. Authors looked at participants' preferences for family involvement (unconditional, conditional, or no involvement) and patterns of family contact with teams during participants' first 12 months at OnTrackNY.
 

Figure 1: Who participated in this study?

This study was based on 761 OnTrackNY participants enrolled between August 2015 and December 2017.

Study findings

Finding 1. At program enrollment, most participants requested some form of family involvement; 59% wanted unconditional involvement; 35% wanted conditional involvement; and 6% wanted no family involvement.

Finding 2. Participants that request no family involvement were more likely to be older, employed, and to have graduated from college; they also were less likely to have a designated support person.

Finding 3. Those requesting no or conditional family involvement were more likely to leave the OnTrackNY program within the first 12 months.

Finding 4. Teams reported having contact with a majority of families (between 73% to 84%).

Figure 2: Fewer participants requesting no family involvement reported having a support person

Final thoughts

Structuring family involvement around participants’ preferences did not affect the level of family contact with teams. Additional studies are needed to deepen the understanding of participants’ preferences for family involvement and subsequent levels of family contact.

References

1. Jones N, Basaraba C, Piscitelli S, Jewell T, Nossel I, Bello I, Mascayano F, Scodes J, Marino L, Wall M, Dixon LB. Clients' Preferences for Family Involvement and Subsequent Family Contact Patterns Within OnTrackNY Early Psychosis Services. Psychiatric Services. 2021 Apr 1;72(4):399-407. doi: 10.1176/appi.ps.202000241. Epub 2021 Feb 3. PMID: 33530730.

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